Using data to reduce or eliminate need for control
Post# of 72446
(Total Views: 239)
Posted On: 02/25/2019 10:29:20 AM
Using data to reduce or eliminate need for control groups in clinical trials:
https://www.statnews.com/2019/02/25/can-roche...al-trials/
It would be great if patients in clinical trials all get the experimental drug and their improvement can be compared to the average untreated patient, as seen in data.
However, is anyone else uneasy at the idea that this company is getting their data by buying a medical records company, and then "hiring contractors" (meaning, college students and other people who work for low pay) to READ YOUR MEDICAL RECORDS to create this database? Many doctors and clinics now require people to agree to electronic medical records or they won't take them as patients. But why is some random person hired by a company allowed to read my medical records, because the company that provides this service decides that's okay, and without my permission?
https://www.statnews.com/2019/02/25/can-roche...al-trials/
It would be great if patients in clinical trials all get the experimental drug and their improvement can be compared to the average untreated patient, as seen in data.
However, is anyone else uneasy at the idea that this company is getting their data by buying a medical records company, and then "hiring contractors" (meaning, college students and other people who work for low pay) to READ YOUR MEDICAL RECORDS to create this database? Many doctors and clinics now require people to agree to electronic medical records or they won't take them as patients. But why is some random person hired by a company allowed to read my medical records, because the company that provides this service decides that's okay, and without my permission?
Quote:
They convinced GV, Alphabet’s venture capital arm, to fund the $100 million purchase of a company that sold an electronic health record used by oncologists in May 2014......
Flatiron hires large numbers of contractors to read through doctors’ notes in order to abstract important information — for instance, when a patient’s tumors grew or worsened, the usual measure of effectiveness in a clinical trial. ...
It has a vast database of patient information from clinical trials.....
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