Lupus Foundation of America Advances Lupus Research in 2025
Innovations in Lupus Research Presented at the ACR 2025
Studies highlight insights and innovations to advance lupus care.
At the American College of Rheumatology (ACR) Convergence 2025 meeting, the Lupus Foundation of America (LFA) is set to unveil pioneering research focused on enhancing patient-centered care. The event, occurring from October 24 to 29, will showcase multiple efforts to increase representation in clinical trials, utilize digital health advancements, and fast-track lupus research developments.
Joy Buie, PhD, MSCR, RN, the Vice President of Research at the LFA, expressed excitement about the expansive range of lupus studies being featured this year. The research encompasses digital tools and educational programs aimed at amplifying the voices of individuals affected by lupus. Each presentation serves as evidence of progression within the field, ensuring all individuals with lupus feel included in ongoing research and future care initiatives.
Enhancing Representation in Clinical Trials
One groundbreaking study, titled "Increasing Participation in the FT819 Cell Therapy Trial Among People Living with Lupus: A Focus Group Study," marks the beginning of a vital exploration into systemic lupus erythematosus (SLE) research. Through a series of focus groups, participants expressed their attitudes toward the CAR T-cell therapy trial for the Fate Therapeutics FT819 product. While many highlighted benefits like improved living quality and potential remission, concerns emerged regarding side effects, hospital stay lengths, and various logistical challenges.
Another relevant study, "Improving Participation in The Lupus Foundation of America's Research Accelerated by You (RAY) Patient Registry By Understanding Patient Preference in Communication Strategies," delves into racial disparities concerning representation in the RAY registry. With Black or African American populations constituting a significant portion of the lupus community, only a small segment is represented in clinical trials. The study indicates that fostering trust and employing culturally appropriate communication can significantly enhance participation rates among underserved groups.
Leveraging Digital Health Innovations
The LFA's commitment to digital health will also be highlighted through a poster presentation titled "Implementation of a Lupus Self-Management mHealth App: Using Incentives to Drive Engagement." This project illustrates the use of their SELF app aimed at empowering individuals to manage their condition more effectively. The study indicates that social media initiatives successfully attracted over 1,700 new users, furthering participation and retention through increased engagement.
An abstract focused on the Lupus & You virtual education program underscores the need for accessible resources. Over four years, more than 20,000 registrants have engaged with the program, showcasing the importance of virtual educational opportunities for those impacted by lupus.
Shaping the Future of Lupus Care
Results from the study "Creating an EHR Lupus Outreach Dashboard to Address Care Gaps" unveil the collaboration between LFA and the University of Wisconsin-Madison. This multidisciplinary approach aims to adapt successful interventions from HIV care into a lupus-specific electronic health record system that enhances follow-up and care delivery.
Our community engagement expands with a new session, "Implementation Science in Action: Peer Support Strategies for Digital Lupus Self-Management Programs," which will explore historically successful patient support frameworks to bolster accessibility and improve health outcomes for lupus patients through shared experiences.
Supporting Early Career Scientists
The LFA continues its mission to cultivate new researchers within the lupus community. The annual meeting includes presentations from early career scientists focusing on a variety of essential topics, including:
- Abhimanyu Amarnani, MD, PhD: Role of a Pathogenic Bacterial Factor Produced by a Human Gut Pathobiont in Inducing Platelet Activation and Thrombo-Inflammation
- Rashmi Dhital, MD: Racial Differences in Cardiovascular Events and Adverse Pregnancy Outcomes Among Pregnant Individuals with Systemic Lupus Erythematosus
- Siva Kasinathan, MD, PhD: Protein-Coding Somatic Genetic Variation in Lymphocytes in Systemic Lupus Erythematosus
- Liyoung Kim, MD: Immune Cell/Pathway-Specific Polygenic Scores Reveal Immune Pathway Associations in Childhood-Onset Lupus Nephritis
- Alicia Tran: Ethnic Disparities in Mental Health Screening, Diagnoses, and Outcomes in Patients with Childhood-Onset Systemic Lupus Erythematosus
Follow along with the latest news and insights from the ACR meeting as the LFA shares real-time updates on significant scientific advancements and trends in lupus care and research.
Frequently Asked Questions
What is the focus of the Lupus Foundation of America at the ACR 2025?
The LFA will showcase a variety of patient-centered research initiatives aimed at enhancing lupus care and increasing representation in clinical trials.
How does the LFA improve communication for diverse populations?
Through tailored messaging and building trust, the LFA's studies show that effective communication can significantly enhance minority participation in research.
What tools are being utilized for lupus self-management?
The LFA's SELF app promotes disease management through user engagement strategies supported by digital health innovations.
How many people have registered for the Lupus & You program?
The program has successfully reached over 20,000 registrants, emphasizing the need for accessible education in lupus care.
What is the importance of peer support in lupus management?
Peer support plays a crucial role in bridging the gap between research and practical application, allowing for sustained health benefits through communal strategies.
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