Curant Health Partners with IntraBio for Innovative NPC Therapy
Curant Health Partners with IntraBio for Advanced Therapy
Curant Health has been selected by IntraBio as the exclusive specialty pharmacy for a revolutionary new product, AQNEURSA™ (levacetylleucine). This medication stands as the first FDA-approved standalone treatment for Niemann-Pick Disease Type C (NPC), underscoring the commitment to address the needs of patients dealing with rare diseases.
Understanding Niemann-Pick Disease Type C
Niemann-Pick Disease Type C is a rare genetic disorder that disrupts cholesterol metabolism, leading to serious neurological deterioration. This disease complicates the lives of affected individuals, with symptoms manifesting primarily in children yet may also affect adults. The estimated prevalence is around 1 in every 100,000 live births.
Affected individuals face numerous challenges, including progressive decline in cognitive and motor functions. This unfortunate condition is marked by the accumulation of cholesterol in critical organs and brain tissue, resulting in debilitating systemic and psychiatric symptoms. For those navigating these challenges, having effective treatment options like AQNEURSA™ is vital.
AQNEURSA™ – A Game-Changer for Patients
AQNEURSA™ is an innovative therapy specifically designed for treating the neurological symptoms associated with NPC. Research demonstrates that it offers remarkable advancements in alleviating neurological symptoms, leading to improved functional outcomes for both adult and pediatric patients.
Curant Health’s Commitment to Patients
The partnership between Curant Health and IntraBio reflects a shared mission to deliver transformative therapies for rare and ultra-rare diseases. Patrick Dunham, CEO and Co-Founder of Curant Health, expressed his enthusiasm for the collaboration, highlighting how this initiative embodies their dedication to enhancing the lives of NPC patients and their families.
Curant Health is committed to delivering comprehensive support for patients and their families as they navigate the complex healthcare landscape. With this innovative therapy, the company seeks to significantly uplift the quality of care that NPC patients receive.
About Curant Health
With over twenty years of experience in the rare disease space, Curant Health offers robust distribution and data solutions tailored for the needs of patients with rare and ultra-rare diseases. The company's patient-centric model emphasizes meaningful outcomes through personalized care that addresses physical, mental, and emotional health.
Curant Health has developed advanced services like Medication Care Management to provide valuable insights into patient journeys, effectively enhancing patient compliance and overall quality of life. This approach to health management involves reporting on patient needs and outcomes, including adverse events and drug interactions.
Looking Ahead: The Future of NPC Treatment
The collaboration between Curant Health and IntraBio heralds a new era in the treatment landscape for Niemann-Pick Disease Type C. AQNEURSA™ is more than just a medication; it’s a promise of hope for families dealing with NPC. Ensuring that patients receive not only medication but also extensive support throughout their treatment journey is essential for overall success.
Empowering Patients and Families
As the healthcare community centers its focus on rare disease management, partnerships like this one will likely pave the way for more advancements in treatment options. Organizations committed to children's health and well-being must work collaboratively to ensure that innovations like AQNEURSA™ reach those in need.
Frequently Asked Questions
What is AQNEURSA™?
AQNEURSA™ (levacetylleucine) is a newly FDA-approved therapy for treating neurological symptoms associated with Niemann-Pick Disease Type C.
Why was Curant Health chosen as the exclusive pharmacy?
Curant Health was selected for its expertise in handling patients with rare diseases and its commitment to delivering personalized patient care.
Who is affected by Niemann-Pick Disease Type C?
This genetic disorder primarily affects children but can also present in adults, leading to serious neurological challenges.
How does Curant Health support patients?
Curant Health provides tailored care solutions, resources, and support systems to enhance the patient journey for those with rare conditions.
What does the partnership aim to achieve?
The partnership aims to improve patient outcomes, compliance, and overall quality of life for those affected by Niemann-Pick Disease Type C.
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