Advocating for Liver Health: A Call to Action for Patients
Rallying for Liver Health in Washington
The American Liver Foundation (ALF) is uniting patients, caregivers, and family members impacted by liver disease in a significant advocacy event. This gathering, known as the Liver Life Advocacy Summit, seeks to promote crucial legislative goals aimed at enhancing liver health across the nation. The summit will provide a platform for advocates to address the pressing issues surrounding liver disease, which affects approximately 80 to 100 million Americans.
Understanding the Impact of Liver Disease
Liver disease often goes unnoticed in the healthcare system, resulting in critical gaps in funding and resources for prevention and treatment. At the summit, advocates will work to highlight these shortfalls, emphasizing the need for increased federal investment in early diagnosis and treatment options. The advocates plan to engage with lawmakers to push for changes that will lead to better healthcare policies for individuals living with liver issues.
Advocacy Goals
Key objectives during the summit include advocating for increased funding for research into Metabolic-Associated Steatotic Liver Disease (MASLD) and expanding liver disease awareness programs through the Center for Disease Control and Prevention (CDC). By shining a light on these priorities, advocates hope to foster an environment where significant progress can be made in the realm of liver health.
The Voices Behind the Advocacy
“ALF has a passionate community of Liver Life Advocates dedicated to making a difference for those living with liver disease,” states Lorraine Stiehl, Chief Executive Officer of American Liver Foundation. The voices of those affected by liver conditions will be amplified through this summit, bringing personal stories to the forefront of legislative discussions.
A Personal Commitment to Advocacy
Advocates like Carley Jaymes Vogel, a young woman who survived autoimmune hepatitis, represent the resilience of individuals facing liver challenges. “At 12 years old, I was diagnosed, and that experience taught me the importance of organ donation and advocacy,” she shares. The personal narratives shared at the summit serve as compelling testimonies to the urgency of supportive legislation.
Building a Supportive Network
ALF’s efforts will culminate in a dinner honoring two congressional leaders who have demonstrated a commitment to advancing liver health initiatives. This gathering will also celebrate the relentless work of advocates striving to uphold the needs of millions affected by liver disease.
Engaging with Lawmakers
On the following day, advocates will descend on Capitol Hill to meet with lawmakers personally, urging them to consider and support ALF's legislative priorities. These priorities are rooted in enhancing the overall well-being of individuals who live with liver diseases.
Taking Action and Spreading Awareness
The American Liver Foundation encourages anyone interested in liver health advocacy to consider becoming a Liver Life Advocate. This role allows individuals to contribute to essential efforts focused on liver wellness and disease prevention.
About the American Liver Foundation
The American Liver Foundation (ALF) stands as a critical entity providing resources and support for the 100 million Americans impacted by liver disease. The organization focuses on patient advocacy, funding for research, and public education regarding liver health. ALF’s community-oriented approach aims to engage and inform affected individuals and their families, building a resilient network of support.
Frequently Asked Questions
What is the purpose of the Liver Life Advocacy Summit?
The summit aims to unite advocates to promote significant legislative initiatives for improving liver health across the nation.
How can I get involved with the American Liver Foundation?
Individuals can become a Liver Life Advocate, participating in events and advocacy efforts focused on liver disease.
Why is liver disease funding so important?
Increased funding is essential for research, early diagnosis, and treatment, which are crucial for many Americans affected by liver disease.
What impact does liver disease have on patients?
Liver disease can severely affect overall health and quality of life, requiring ongoing advocacy for better treatment options.
Who can benefit from ALF’s resources?
Patients, caregivers, and families affected by liver disease can access valuable support, guidance, and information through ALF.
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