Niele,
My heart goes out to you. I agree with Normy"s post (#162805) that everyone should have a bottle of leronlimab in their pocket, however that would be extremely difficult to come by at this time. The Alzheimers study at Weill-Cornell is just starting to enroll. They are taking patients with mild to moderate Alzheimers, but your relative may be too far progressed to be admitted. There is a requirement for patients to visit the study site for tests and studies at least once and the study site is in New York, NY. They are only admitting 20 patients to the study.
Contact :
Edward Spector, BS
6469628506 ejs4002@med.cornell.edu
My mother died at 99.8 years of age. She developed increasing mental deterioration in her last 10 years of life. I had 10 siblings and with the help of 2 nurses we were able to keep her in her home until she passed away. She was given memantine (Namenda - now off the market) when she was 95 by her internist, and she declined markedly in her mental status in just a few days. I read dozens of anecdotal reports of others whose loved ones had a similar reaction, from which they did not recover despite stopping the drug. The same was true for my mother. My sister called me and told me and we stopped it. Prior to that she could sit down at her grand piano when we were together for Christmas and play one carol after another without sheet music. That drug is now combined with donepezil (Aricept) and still sold - kind of like Remdesiv - shouldn't be on the market.
In my 45 years of medical practice in community hospitals in rural areas, I not only practiced emergency medicine, but was chief of staff for years at rural facilities that had Distinct-Part Skilled Nursing Facilities, so I dealt with a lot of Alzheimers patients. Relatively young males, like your relative are extremely hard to control, they are often very strong and mobile, even when they are not violent, and skilled nursing facilities don't want them. Licensing authorities don't want patients to have marked sedation and care for the patient is very difficult. Especially because many of these patients "sundown" which means that they get more confused at night and it is impossible to keep them in their bed or their room. They bother other patients, they become kicker-biter-sceratchers, attacking nursing personnel.
The whole business is terrible and I pray to God that our Alzheimers studies will show benefit.
My heart goes out to you. I agree with Normy"s post (#162805) that everyone should have a bottle of leronlimab in their pocket, however that would be extremely difficult to come by at this time. The Alzheimers study at Weill-Cornell is just starting to enroll. They are taking patients with mild to moderate Alzheimers, but your relative may be too far progressed to be admitted. There is a requirement for patients to visit the study site for tests and studies at least once and the study site is in New York, NY. They are only admitting 20 patients to the study.
Contact :
Edward Spector, BS
6469628506 ejs4002@med.cornell.edu
My mother died at 99.8 years of age. She developed increasing mental deterioration in her last 10 years of life. I had 10 siblings and with the help of 2 nurses we were able to keep her in her home until she passed away. She was given memantine (Namenda - now off the market) when she was 95 by her internist, and she declined markedly in her mental status in just a few days. I read dozens of anecdotal reports of others whose loved ones had a similar reaction, from which they did not recover despite stopping the drug. The same was true for my mother. My sister called me and told me and we stopped it. Prior to that she could sit down at her grand piano when we were together for Christmas and play one carol after another without sheet music. That drug is now combined with donepezil (Aricept) and still sold - kind of like Remdesiv - shouldn't be on the market.
In my 45 years of medical practice in community hospitals in rural areas, I not only practiced emergency medicine, but was chief of staff for years at rural facilities that had Distinct-Part Skilled Nursing Facilities, so I dealt with a lot of Alzheimers patients. Relatively young males, like your relative are extremely hard to control, they are often very strong and mobile, even when they are not violent, and skilled nursing facilities don't want them. Licensing authorities don't want patients to have marked sedation and care for the patient is very difficult. Especially because many of these patients "sundown" which means that they get more confused at night and it is impossible to keep them in their bed or their room. They bother other patients, they become kicker-biter-sceratchers, attacking nursing personnel.
The whole business is terrible and I pray to God that our Alzheimers studies will show benefit.
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