Thank you ohm for this incredible resource! Thank you
Thank you ohm for this incredible resource! Thank you twinter for CytoDyn's additional info sheet!
ohm's leron summary/resources was put into a word doc to share with a loved one's oncologist.
(metastatic breast cancer (HR+ I think), various solid tumors)
She (JT) finally agreed to ask her beloved oncologist about leronlimab this week.
Am giddy about the prospect.
And compelled to vent about the challenges.
The access policy sheet states: 'Patients can access leronlimab outside the clinical trial setting in two different ways: through the Expanded Access Program (EAP) for eligible patients with triple negative breast cancer (TNBC) or through an emergency IND (eIND) for eligible patients with solid tumors. Under both pathways, the patient must have a serious or immediately life-threatening disease or condition and have no comparable or satisfactory alternative therapy options available.'
For the person sharing (me in this case): It is an emotionally mixed gift to indicate to a loved one that you think that their life is in immediate peril. (Have hysterically tried to get others to get access to leron...didn't end well so I'm toning it down.)
For the patient: Much of what they have left is hope, faith in their doc, their own will and a good dose of denial. (Am going with the angle that leron is a partner to support her and the doc in her fight. And that in a few years, it will most likely be SOC.)
For the doc: This oncologist has been by her side for 7 years and adores her. Desperate to prolong her life and her hope. I don't know his experience with the eIND process but imagine telling a patient that you are out of options for them is pretty rough. I don't get to talk to him so relying on JT- the patient- to get him to spend more than one minute in looking at a google search of past litigation....
Thankful for ohm's introduction. It helps overcome some of the major obstacles. Eager for the day that we don't have to be in this 'last resort', 'out of options' BS phase ....
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