Thanks for posting House. Great find and well worth the read. Particularly interesting to me as I have tried to work toward getting right to try (cancer) for an individual for several years. Without success. So in addition to Dr. J's spot on priorities- e,g., peer reviewed articles and partnerships- this is a also prime concern for many of us.
Highlights:
"I want to highly recommend that if you are waiting for a curative treatment (for me that’s drugs that impact the CCR5 receptor), you have the right to try investigational drugs that have not yet been approved.'
'I am getting an eIND for a drug I already trialed, so this will be considered expanded access for a previous patient. They can use my stats from the research, which already shows I responded extremely well to the drug, so there is less burden on proving the proposed treatment plan will be successful.
I am not sure if they are considering those who have not already trialed the drug or not. But it is called Leronlimab.'
' I know there’s a lot of opinion regarding Bruce Patterson, but I hosted some interviews with him on behalf of my nonprofit alongside some of the other long Covid nonprofits. He went into detail about treatment, ideas and protocols, including for MCAS mast cell activation, and for cytokine storm. He is the one who told me about this trial and recommended I try to get into it. Did NOT do any of his testing or treatments, but it did lead me in the way of proper clinical research.'
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Posted By: HouseofCards
Looks like they're the same person that made the below reddit post yesterday. It was shared in one of the facebook groups this morning.
redditt- RTT- Covid Long Haulers
Highlights:
"I want to highly recommend that if you are waiting for a curative treatment (for me that’s drugs that impact the CCR5 receptor), you have the right to try investigational drugs that have not yet been approved.'
'I am getting an eIND for a drug I already trialed, so this will be considered expanded access for a previous patient. They can use my stats from the research, which already shows I responded extremely well to the drug, so there is less burden on proving the proposed treatment plan will be successful.
I am not sure if they are considering those who have not already trialed the drug or not. But it is called Leronlimab.'
' I know there’s a lot of opinion regarding Bruce Patterson, but I hosted some interviews with him on behalf of my nonprofit alongside some of the other long Covid nonprofits. He went into detail about treatment, ideas and protocols, including for MCAS mast cell activation, and for cytokine storm. He is the one who told me about this trial and recommended I try to get into it. Did NOT do any of his testing or treatments, but it did lead me in the way of proper clinical research.'
_____________
Posted By: HouseofCards
Looks like they're the same person that made the below reddit post yesterday. It was shared in one of the facebook groups this morning.
redditt- RTT- Covid Long Haulers
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