This was posted on Facebook by someone who was in
Post# of 148115
Quote:
I have been waiting on this for YEARS. Since 2021 when I received this drug in an exploratory trial for long COVID. I had miraculous success and then the trial ended, drug wore off, and the post covid immune dysfunction returned.
While the trial did not meet the necessary endpoints to be considered a success by the FDA, to me it was magic in a shot.
My life has so much much joy, but I also have many limitations and repercussions for leaving bed, and pain from ongoing immune dysfunction and the mast cell and pericarditis.
I hope to find an avenue to gain access to this drug again. For the first time in years, I have hope about receiving an exponentially helpful treatment again.