Nelson: Sorry to hear about your friend. I lost
Post# of 143476
She tried 2 experimental treatments after her initial standard treatment: First Optune and later MDNA-55 from Medicenna, a Canadian biotech company, in a Phase II clinical trial at UCSF. I can't know for sure, but I ascribe her much longer than average survival to these two treatments. I believe Optune is still being used, just google it. The MDNA-55 trial is over and I don't know if any new ones have been started or if the treatment is available through compassionate use requests. Contact the company if interested.
I would be happy to share my experience with these two treatments with you or anyone else interested. Just send me a private message so we can set up a phone call. In any case good luck to your friend. I hope LL becomes available as an experimental treatment in time for her to try it. Perhaps these other two that I mentioned could act as a bridge to help her last until that time. Sincerely, Ganesha
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