I largely agree; letter writing campaigns alone won't do it. But I think it's overly dismissive to suggest that awareness in the medical community isn't helpful.. or that pressure from patients and advocates doesn't affect the FDA. QThat was supposedly a big factor in the recent non-Alzheimer's Treatment's hurried push through approval, despite protestations from nearly all the people that would normally matter.
You have all kinds of well intentioned but scientifically ignorant clinicians who pushed for approvals for things that don't work.. some got temporary authorization.
Unfortunately, I think the only way to truly get that is by directly saving the lives of these front line medical workers.. their first hand experience is a powerful motivator. Ask Dr. Recknor.