I have been wondering why very little data/news fr
Post# of 148188
Quote:Thanks Rubraquercus.
I have been wondering why very little data/news from the newest EIND patients. Did the FDA shut them up?
I'm not sure it's a theory -- as much as it is a wish of mine. We all know how very sick those Montefiore patients were, and its maybe easier for those of us on the board to be impressed with 4 out of 9 surviving. I'm not sure the public or FDA will be as comforted by those numbers.
However, our post-Montefiore survival statistics are nothing short of stunning, and I really hope those metrics are available at the same time.
Lastly, I do recall NP saying something to the effect that not all of the doctors treating the latest EIND patients have been sending blood samples back to Dr. Patterson. That could be a contributing factor.