Ultragenyx Celebrates Milestones in Rare Disease Treatments and Impact
Ultragenyx's Commitment to Rare Disease Innovation
Ultragenyx Pharmaceutical Inc. (NASDAQ: RARE) recently published its 2024 Impact Report, illustrating the company’s ongoing dedication to corporate responsibility and patient support in the realm of rare diseases. The report showcases how Ultragenyx strives to impact the lives of those affected, while empowering employees and enhancing community welfare.
Vision and Mission Behind Corporate Responsibility
Emil Kakkis, M.D., Ph.D., the founder and CEO of Ultragenyx, emphasized the company’s commitment to making a sustained difference in the rare disease sector. “Our goal has always been to construct a next-generation organization that prioritizes the needs of the rare disease community,” Kakkis explained. The company’s philosophy is underpinned by ethical decision-making that often incorporates sustainability and social impact considerations.
Strategic Pillars of Impact
The 2024 report divulges Ultragenyx's strategy structured around six essential pillars: Innovation, Patients, People, Communities, Planet, and Governance. Each pillar serves to advance its mission of transforming patient experiences through effective treatments. Detailed updates are provided for all six pillars in the report, alongside the Sustainability Accounting Standards Board (SASB) and Global Reporting Initiative (GRI) indices.
Innovations Fueled by Commitment
Central to Ultragenyx's mission is its innovative approach to drug development. The company has successfully transitioned the manufacturing process of its DTX401 gene therapy to a specialized facility, enabling more efficient production. Furthermore, it has made significant advancements across various clinical programs aimed at treating rare conditions like osteogenesis imperfecta (OI) and Angelman syndrome.
Patient Support Initiatives
Ultragenyx showcases its commitment to patient-centric care through remarkable support initiatives. Since 2013, the company has helped over 650 patients across 50 countries, ensuring they gain access to its treatments via expanded access and assistance programs. Advocacy for newborn screening legislation and organizing Rare Bootcamp events are further highlights of their dedication to the rare disease community.
Investment in People and Communities
A core element of Ultragenyx's culture is the prioritization of its employees. The company has introduced the Executive Edge program to foster leadership skills among its senior management. The engagement levels among employees are notably high, with an impressive 88% participation rate in engagement surveys, indicating a positive work environment.
Community Engagement and Environmental Responsibility
Ultragenyx actively invests in communities, committing over $3 million to charitable donations and educational initiatives. The company also organizes global days of service, where employees participate in various community projects to amplify their impact.
Governance and Ethical Practices
Adhering to high standards of corporate governance is vital for Ultragenyx. Their commitment to ethics, compliance, and transparency guides the company's operations. Notably, over 90% of participants in its annual compliance culture survey reported confidence in executing their roles effectively.
Acknowledgments and Awards
The accomplishments of Ultragenyx in 2024 did not go unnoticed. The company was recognized by various prestigious organizations, being named one of the 100 Most Sustainable Companies and awarded multiple accolades for workplace excellence, highlighting its leadership in corporate citizenship and employee satisfaction.
About Ultragenyx
Ultragenyx is dedicated to developing innovative treatments for rare and ultra-rare genetic diseases. With a diverse range of approved therapies, the company seeks to address significant unmet medical needs. The well-rounded management team brings invaluable expertise in navigating the intricate landscape of rare disease therapeutics, ensuring rapid and effective delivery of new treatments to patients in need.
Frequently Asked Questions
What is the focus of Ultragenyx's 2024 Impact Report?
The report emphasizes Ultragenyx's corporate responsibility and continuing commitment to improving patient care in the rare disease sector.
How has Ultragenyx supported patients globally?
Ultragenyx has facilitated access to its treatments for over 650 patients in 50 countries through expanded access and assistance programs since 2013.
What are the six pillars of Ultragenyx’s corporate responsibility?
The six key pillars include Innovation, Patients, People, Communities, Planet, and Governance, driving their mission to enhance rare disease treatments.
What initiatives has Ultragenyx implemented for employee engagement?
The company has launched programs like Executive Edge to develop leadership skills and received a high employee engagement score of 88%.
How does Ultragenyx contribute to the community?
Ultragenyx has invested over $3 million in charitable donations and hosted community service projects to make a meaningful impact.
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