Empowering Patients: Launch of Cure CMT for Charcot-Marie-Tooth
Empowering Patients with Cure CMT
Pat Livney's Personal Journey Inspires Action to Help Patients Walk and Invest for Tomorrow
A new nonprofit organization, Cure CMT, has initiated its mission to support individuals impacted by Charcot-Marie-Tooth (CMT) disease. This organization aims to offer essential care that includes braces and surgical interventions to help people regain mobility. Additionally, it is committed to a mission focused on advance discovery towards a future cure. Founded by Pat Livney, who herself is a CMT patient and a healthcare entrepreneur, Cure CMT recognizes the urgent need for accessibility in treatments and interventions.
CMT is a prevalent inherited neurological disorder affecting over 3 million individuals worldwide. This condition gradually harms the peripheral nerves, leading to symptoms such as muscle weakness, loss of sensation, and deformities in the feet.
Despite the widespread affliction, many patients still face obstacles in obtaining basic care options like custom-fitted braces or essential surgeries that can significantly enhance their daily lives. Cure CMT steps in as the first national entity dedicated to providing these vital services while establishing the means necessary to fund research for a cure.
"This is deeply personal," said Pat Livney, the Founder and CEO of Cure CMT. "I understand the challenge of losing mobility and the dedication required to reclaim it. We are committed to providing immediate assistance while working towards a future free of this condition."
The organization recently launched its website, offering a platform for patients to connect with health providers and access the resources they need. Cure CMT is also developing an innovative venture philanthropy model that will channel private investments into cutting-edge scientific and therapeutic developments.
"We are blending urgent care with long-term solutions," Livney explained. "Our focus is on braces, surgeries, and groundbreaking discoveries."
Cure CMT is partnering with healthcare professionals, including clinicians, prosthetists, and orthopedic surgeons across the country to optimize referral processes and promote equitable care access. Additionally, the organization advocates to elevate awareness, promote earlier diagnosis, and enhance healthcare coverage for individuals suffering from inherited neuropathies.
Individuals interested in learning more, referring a patient, or supporting the mission are encouraged to visit www.cure-cmt.org.
Pat Livney
Cure CMT Founder
Frequently Asked Questions
What is Cure CMT?
Cure CMT is a nonprofit organization focused on providing treatment options and supporting research for Charcot-Marie-Tooth disease.
Who founded Cure CMT?
The organization was founded by Pat Livney, a healthcare entrepreneur and CMT patient.
What services does Cure CMT offer?
Cure CMT provides braces and surgical options for patients suffering from CMT while working on future cure possibilities.
How can patients benefit from Cure CMT?
Patients can access urgent care services like braces and surgeries, and they will benefit from enhanced awareness and resources aimed at treatment.
How does Cure CMT promote awareness?
Cure CMT advocates for increased awareness, early diagnosis, and improved health coverage for those suffering from inherited neuropathies.
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