CurePSP Invests in Research Initiatives for Rare Neurological Disorders
Investment in Collaborative Research for Neurological Diseases
CurePSP has announced the recipients of their Collaborative Approaches to Resources, Education and Support (CARES) grants aimed at enhancing care practices for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). With a dedicated focus, these grants support research initiatives across various medical institutions, emphasizing best practices in treatment and care.
Overview of CARES Grants
The CARES program stimulates impactful research through the CurePSP Centers of Care, which encompass 36 medical institutions dedicated to improving the diagnosis and treatment of rare neurodegenerative conditions like PSP, CBD, and MSA. The goal is to foster collaboration and innovative approaches to advance care methodologies.
Projects that qualify for the CARES grants must involve collaboration between at least two Centers of Care. They should focus on person-centered care, improving access to treatment, addressing the needs of underserved populations, or enhancing education within the medical community. For this year, a total of $130,000 has been allocated to fund three significant projects.
Highlighted Research Projects
One noteworthy project involves the University of Chicago and Queen's Health System, which seeks to evaluate healthcare access, disease progression, and survival rates among racial and ethnic minority populations affected by PSP, CBD, or MSA. This research aims to identify gaps in healthcare and improve outcomes for these vulnerable groups.
In another collaborative effort, Stanford University, Cedars-Sinai Medical Center, and the University of California San Francisco will conduct a needs assessment focusing on neurologists' perspectives regarding diagnosing and managing PSP, CBD, and MSA in rural regions. This project will also include organizing local outreach events, promoting awareness and education among healthcare professionals and the community.
Additionally, Michigan State University and the University of Michigan will investigate the efficacy of a speech amplification device in helping patients communicate more effectively, addressing voice symptoms linked to PSP, CBD, and MSA.
CurePSP's Commitment to Community Care
Jessica Shurer, CurePSP's director of clinical affairs and advocacy, remarked on the success of the CARES initiative, stating, "Now in its third successful year, CARES is a testament to our continued commitment to multi-center and interprofessional approaches to improving quality of care and life of our community." This reflects the organization’s dedication to not only advancing research but also enhancing the overall well-being of those affected by these neurological disorders.
About CurePSP and Its Mission
CurePSP stands as a leading nonprofit organization focused on raising awareness, improving care, and seeking a cure for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). Committed to facilitating new treatment options, the organization forges vital partnerships and invests in critical research worldwide.
Through its advocacy and support initiatives, CurePSP works to enhance education, health care delivery, and life quality for individuals living with PSP, CBD, and MSA, as well as their families. At the core of CurePSP’s mission lies the principles of science, community, and hope, guiding all of its services.
Contact Information
For more information related to CurePSP, please reach out to Kristophe Diaz, PhD, Executive Director and Chief Science Officer at 646-725-1453.
Frequently Asked Questions
What are the CARES grants?
The CARES grants are initiatives by CurePSP designed to fund research aimed at improving care practices for PSP, CBD, and MSA.
How much funding was allocated for the CARES projects?
A total of $130,000 was allocated to fund three projects through the CARES program.
Which institutions are involved in the CARES grants?
36 medical institutions across the U.S. are involved in the CARES grant program, collaborating on various projects to enhance patient care.
What is CurePSP's primary mission?
CurePSP's primary mission is to increase awareness, improve care, and work towards finding a cure for PSP, CBD, and MSA.
Who can I contact for more information about CurePSP?
You can contact Kristophe Diaz, PhD, Executive Director and Chief Science Officer, for inquiries related to CurePSP.
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