Congressional Resolution Empowers NICU Families with Rights
NICU Parent Network Celebrates New Bill of Rights for Families
This resolution, introduced by Representatives Erin Houchin and Morgan McGarvey, emphasizes the importance of family-centered care and informed consent in neonatal intensive care units (NICUs). The NICU Parent Network, a leading organization in supporting NICU families, commends this significant development.
Understanding the Importance of the NICU Baby's Bill of Rights
Every year, over 380,000 infants are born prematurely in the U.S., with many others born full-term but requiring specialized medical attention. This legislative initiative recognizes the unique challenges faced by families during these critical times. The NICU Baby's Bill of Rights aims to enhance the support provided to these families, advocating for their essential role in their baby's care.
The Personal Touch in Legislative Changes
Rep. McGarvey shared his own emotional journey as a NICU parent, detailing the hurdles he faced with insurance while ensuring the proper care for his twins. He expressed pride in collaborating with Rep. Houchin on this crucial legislation, emphasizing how vital knowledge becomes in advocating for loved ones.
Encouraging Family Presence in NICUs
The introduction of this resolution aims to empower parents, urging hospitals to adopt clear policies that promote parental involvement and collaboration in their child's care. It is essential for families to feel supported and heard in these challenging environments.
A Voice for NICU Families
Rep. Houchin also voiced her support, stating that NICU parents should always be informed about their child’s treatment options and actively included in discussions regarding care. This initiative strives for comprehensive involvement of parents right from the first interaction with medical staff.
Key Changes Proposed by the Resolution
The resolution promotes an informed consent model for all critical health decisions impacting NICU babies. This includes treatment plans and nutritional guidelines, ensuring that families fully understand the available care options along with their respective risks and benefits.
Finding Strength in Community
Keira Sorrells, the Founder and Executive Director of the NICU Parent Network, shared her perspective as a NICU parent. She highlighted how vital it is for parents to play an active role in their child's healthcare journey, rather than feeling like mere observers. The support generated by this resolution encourages NICU families to thrive instead of merely surviving difficult experiences.
About NICU Parent Network
The NICU Parent Network (NPN) serves families with infants in NICUs and is recognized as the sole professional association for NICU Parent Leaders in the United States. By fostering a collaborative community, NPN aims to elevate the needs and best interests of NICU families across healthcare policies, advocacy, education, and family support systems.
Media Contact
For media inquiries, please reach out directly to Keira Sorrells at 601-573-0601.
Frequently Asked Questions
What is the NICU Baby's Bill of Rights?
The NICU Baby's Bill of Rights is a new resolution aimed at involving parents in care decisions in NICUs to improve family-centered care and support.
Who introduced the NICU Baby's Bill of Rights?
This resolution was introduced by Representatives Erin Houchin and Morgan McGarvey.
Why is parental involvement important in NICUs?
Parental involvement is crucial as it ensures that families are informed and are active participants in their child's care, which can lead to better health outcomes.
What support does the NICU Parent Network provide?
The NICU Parent Network offers resources and support for families of NICU infants and advocates for NICU Parent Leaders across healthcare systems.
How can parents advocate for their child's care in the NICU?
Parents can advocate by staying informed about treatment options, asking questions, and collaborating with healthcare teams for their baby's care.
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