Advocacy for Living Kidney Donors Takes Center Stage in DC
Advancing Kidney Health Through Legislative Support
Today marks a significant event as over three dozen Ambassadors from the American Kidney Fund (AKF) gather to engage with lawmakers in the capital. This meeting is centered around two crucial matters—the removal of obstacles that impede living organ donation and the protection of Medicaid, a critical program for countless individuals, including those grappling with kidney disease.
Living Donor Protection Act: A Step Forward
Representing 18 states and the District of Columbia, these AKF Ambassadors consist of kidney patients, caregivers, and living kidney donors. Their mission is clear: to advocate for the Living Donor Protection Act of 2025 (S.1552). This vital legislation aims to prevent insurance companies from denying or canceling coverage, increasing premiums, or altering terms solely because someone is a living organ donor.
Impact of Legislation on Kidney Community
This act has far-reaching implications for the kidney community. As Congress debates the future of Medicaid, it becomes even more crucial for AKF Ambassadors to make their voices heard. Any proposals that could drastically alter Medicaid's funding or availability present a dire threat, especially since approximately 45% of End Stage Renal Disease (ESRD) beneficiaries rely on Medicaid for essential healthcare. AKF Ambassadors strive to protect this imperative program.
The Role of Medicaid in Kidney Health
Medicaid serves a vital function; it provides health coverage for people with limited income and resources. By facilitating access to screenings and essential health benefits, Medicaid plays an essential role in the prevention of chronic kidney disease. Additionally, it covers the premiums and coinsurance for those on dialysis who qualify for Medicare, making it indispensable for many low-income patients.
Sharing Personal Stories for Legislative Change
"Today's activities on Capitol Hill are crucial in amplifying the messages of the kidney community, which comprises over 35 million individuals. Our goal is to ensure that policymakers are aware of the impact of their decisions on their constituents," stated LaVarne A. Burton, AKF President and CEO. The Ambassadors share their personal experiences, shedding light on how kidney disease affects their lives and emphasizing the necessity for legislators to prioritize kidney health.
FMLA Protections for Living Organ Donors
The Living Donor Protection Act of 2025 also includes important provisions that codify a Department of Labor opinion letter from 2018, affirming that organ donation is protected under the Family Medical Leave Act (FMLA). This legislation would ensure that living organ donors have the protection they need to take time off work for donation recovery without the concern of job security.
Corporate Support Fuels the Movement
AKF extends its heartfelt gratitude to the corporate members who have made this year’s Kidney Action Summit a reality. Supporters include industry leaders such as Akebia Therapeutics, Inc., Alexion Pharmaceuticals, Inc., Amgen, Inc., and many others who share a commitment to improving kidney health.
About the American Kidney Fund
The American Kidney Fund (AKF) is dedicated to fighting kidney disease while making significant strides in advocacy, prevention, and support. As a leading nonprofit, AKF impacts the lives of 1 in 7 Americans dealing with kidney illness. Their diverse array of programs offers help from disease prevention to transplant support. Notably, AKF is widely recognized for its efficient use of donations, allocating 97 cents of every dollar directly to support programs, earning multiple accolades, including a Platinum Seal of Transparency.
Frequently Asked Questions
What is the purpose of the Kidney Action Summit?
The Kidney Action Summit aims to advocate for legislative support for living kidney donors and to protect Medicaid for individuals with kidney disease.
Who are the AKF Ambassadors?
AKF Ambassadors are kidney patients, caregivers, and living kidney donors representing different states, united to raise awareness about kidney health issues.
What is the Living Donor Protection Act of 2025?
This act seeks to protect living organ donors from insurance discrimination and ensure they receive the necessary job protection under FMLA.
Why is Medicaid essential for people with kidney disease?
Medicaid provides critical health coverage, aiding in the prevention of chronic kidney disease and offering financial assistance for low-income patients, particularly those undergoing dialysis.
How does the American Kidney Fund support kidney health?
AKF supports kidney health through programs focused on advocacy, education, early detection of kidney disease, and financial assistance to patients.
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