Empowering Communities for Sickle Cell Awareness Advocacy
Empowering Communities for Sickle Cell Awareness Advocacy
COMMUNITY ACTION CAMPAIGN TO ILLUMINATE COMMUNITIES, RAISE AWARENESS, CALL FOR A UNIVERSAL CURE IN SUPPORT OF SICKLE CELL WARRIORS
Historically African American Sororities And Fraternities Phi Beta Sigma, Omega Psi Phi, And Sigma Gamma Rho Lend Their Voices, Networks To Raise Awareness
Landmarks, Stadiums, And Public Buildings Will Glow Red
As the World Sickle Cell Awareness Day approaches, a remarkable coalition of 47 community-based organizations and medical providers gears up for its seventh annual Shine the Light on Sickle Cell campaign. This initiative has evolved from a local initiative to a noteworthy movement, uniting communities to support sickle cell warriors, spread awareness about Sickle Cell Disease (SCD), and advocate for a universal cure.
The Sickle Cell Improvement in the Northeast Region through Education collaborative, or SiNERGe, is fueling this year's events, activities, and celebratory illuminations that will amplify their powerful message. Supported by the HRSA, the Shine the Light on Sickle Cell campaign has grown to extend well beyond its regional roots. It now reaches communities in places such as Atlanta and London, drawing attention to Sickle Cell Disease.
A unique feature of this campaign is the illuminating of landmarks, stadiums, and public buildings in red, the recognized color that symbolizes awareness for this crucial health issue as the awareness day nears. Each year, these vibrant displays are a beacon of hope and solidarity for those affected by Sickle Cell Disease.
Sickle Cell Disease remains the most prevalent genetic disorder in the country, impacting about 100,000 individuals, with a significant portion residing in the Northeastern states. Millions more carry the trait associated with this blood disorder, which predominantly affects individuals of African and Caribbean descent. Those diagnosed with SCD face multiple complex health issues, including stroke and organ damage, which substantially lower their life expectancy compared to the general population. With no universal cure currently, the urgent need for enhanced access to medical care and research advancements is essential.
Dr. Sophie Lanzkron, Director of the Division of Hematology – Cardeza Foundation for Hematologic Research at Thomas Jefferson University, emphasizes the progress being made. "We are witnessing exciting advancements like gene therapy and bone marrow transplants, which hold the potential to transform the lives of those living with sickle cell disease. But we must also confront the obstacles that persist—issues related to affordability and access to care. Our campaign is committed to shining a spotlight not only on the future possibilities but also on those critical elements that will allow us to realize them.”
In the weeks leading up to the awareness day, numerous buildings across the region will proudly display red lights in support of sickle cell awareness. Locations include prominent sites such as:
- Baltimore, MD: Bromo Seltzer Tower, Johns Hopkins University Hospital, M&T Bank Stadium, and Camden Yards Warehouse.
- Camden, NJ: TRIAD1828 Centre.
- Maryland/Washington, DC Metro: University of Maryland Medical Centers.
- Newark, NJ: City Hall and Krueger-Scott Mansion.
- Philadelphia, PA: Iconic structures including City Hall and the Cira Center.
- Wilmington, DE: Nemours Estate Water Tower.
- Outside the SiNERGe region: Hartsfield-Jackson Atlanta International Airport.
Moreover, community-based organizations are engaging local citizens through various initiatives, many of which are free of charge. Activities will range from candlelight vigils to educational sessions, all aimed at fostering understanding and support for those living with Sickle Cell Disease.
For instance, notable events are scheduled throughout the month, including:
- June 13: A World Sickle Cell Day event featuring educational materials and support messaging at local hospitals.
- June 14: A gala event hosted by local sickle cell advocates.
- June 17: A virtual storytelling session through social media.
- June 19: Presentation on Sickle Cell initiatives during a marathon event, along with a blood drive celebration.
- June 23: The annual celebration remembering the importance of awareness and support in the fight against Sickle Cell Disease.
This year, the campaign proudly welcomes support from three renowned African American organizations—Phi Beta Sigma Fraternity, Omega Psi Phi Fraternity, and Sigma Gamma Rho Sorority—each contributing their networks to elevate the voice for sickle cell awareness.
Individuals are encouraged to show their support by wearing red and using the hashtag #shinethelightonsicklecell2025 to join the conversation surrounding this important awareness initiative.
About Shine the Light on Sickle Cell
Shine the Light on Sickle Cell continues to stand out as an annual campaign dedicated to celebrating World Sickle Cell Awareness Day, asserting the call for a universal cure. This work is made possible through a coalition of community-based organizations which strive to educate and advocate for those impacted by Sickle Cell Disease. This campaign strives to kindle hope and foster change by raising awareness of the needs and experiences of those living with Sickle Cell Disease.
Frequently Asked Questions
What is Sickle Cell Disease?
Sickle Cell Disease is a genetic blood disorder that primarily affects red blood cells, causing various health complications.
What does the Shine the Light on Sickle Cell campaign entail?
This campaign seeks to raise awareness, celebrate Sickle Cell warriors, and advocate for a universal cure through community actions and events.
How can individuals participate in the awareness campaign?
Individuals can support the campaign by wearing red and utilizing social media to raise awareness using designated hashtags.
What health complications do sickle cell warriors face?
Individuals living with Sickle Cell Disease can experience serious health issues, including frequent pain crises, stroke, and other severe complications.
Why is awareness important for Sickle Cell Disease?
Awareness helps to improve education, access to care, and funding for research initiatives aimed at finding a cure.
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