Exploring the Global Impact of an International Symposium
Welcome to the 4th International Symposium on Arthrogryposis
MONTREAL, a city known for its vibrant culture and commitment to healthcare innovation, is gearing up to host the much-anticipated 4th International Symposium on Arthrogryposis Multiplex Congenita. This significant event will be held at the renowned Hôtel Omni Mont-Royal from September 28 to October 1. The Shriners Hospitals for Children - Canada is proud to lead this event, collaborating with notable pediatric centers in Montreal, including CHU Sainte-Justine, Centre de réadaptation Marie Enfant, and Montreal Children's Hospital.
Understanding Arthrogryposis
Arthrogryposis is a collective term for a group of rare conditions characterized by joint stiffness and reduced range of motion in the limbs, affecting approximately 1 in every 3,000 children worldwide. Children born with this condition face various challenges, often limiting their ability to engage in everyday activities. This symposium aims to highlight and deepen the understanding of this condition, which is one among many fetal immobility syndromes that also encompass a range of neurological and muscular problems.
The Importance of Collaboration
The symposium represents more than just a gathering; it symbolizes the collaboration between leading experts and affected families. Dr. Reggie Hamdy and Dr. Noémi Dahan-Oliel, who are leading the scientific and organizing committees, emphasize the necessity of this event. According to Dr. Dahan-Oliel, fostering knowledge exchange and connections among a diverse group of experts can lead to significant scientific advancements beneficial for evidence-based care.
A Showcase of Talent and Resilience
Among the highlights, attendees can look forward to a special performance by Luca "Lazylegz" Patuelli, a dancer who has become a source of inspiration for many. Luca's dedication and zest for life best demonstrate the spirit of resilience that embodies those living with rare diseases. His performance on September 29 during the event's cocktail reception will offer a moment of celebration and reflection.
A Commitment to Advancements in Care
As stated by Dr. Hamdy, the Shriners Healthcare Network prioritizes clinical advancements with a focus on genomics to uncover the genetic roots of conditions like arthrogryposis. This commitment to research and patient care is critical in adapting strategies that resonate with the unique needs of individuals affected by these disorders.
Voices from the Community
In addition to expert discussions, the symposium will feature narratives shared by patients and their families. Their personal experiences in navigating life with arthrogryposis will provide authentic insights into the care they have received and highlight the importance of community support.
Reflecting on Past Symposia
This event continues a rich tradition of international gatherings focused on arthrogryposis, with the inaugural symposium starting in Birmingham, and subsequent events in St. Petersburg and Philadelphia. Each symposium has contributed to a growing collective understanding and improved care strategies, culminating in this year's event in Montreal, which promises to further extend the dialogue and enhance collaborative efforts in the field.
About Shriners Hospitals for Children – Canada
Shriners Hospitals for Children - Canada has proudly operated since 1925, providing specialized orthopedic care to children worldwide. The hospital, known for its bilingual services, is dedicated to treating a variety of conditions including scoliosis and cerebral palsy. With a mission centered on health promotion and rehabilitation, it is essential to ensuring a supportive environment for young patients and their families.
Information and Contact
For those interested in learning more about the symposium, Emmanuelle Rondeau from the Communications team can be reached at 514-282-6990 or via cell at 514-207-1057. For inquiries via email, she can be contacted at erondeau@shrinenet.org.
Frequently Asked Questions
What is the International Symposium on Arthrogryposis?
The International Symposium focuses on sharing knowledge and advancements related to Arthrogryposis Multiplex Congenita, bringing together experts and affected individuals.
When is the event taking place?
The symposium will occur from September 28 to October 1 at Hôtel Omni Mont-Royal, Montreal.
Who are the main speakers at the symposium?
The symposium features renowned experts in the field, including Dr. Reggie Hamdy and Dr. Noémi Dahan-Oliel, among others.
Will there be performances at the event?
Yes, Luca "Lazylegz" Patuelli will perform a dance show during the cocktail reception, highlighting the spirit of resilience.
How can I find more information about the symposium?
For additional details on the symposium program and speakers, please reach out to the contact information provided or visit the Shriners Hospitals for Children – Canada website.
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